Spina bifida (also called myelomeningocele) is a condition in which there is an opening in the spinal column or backbone of the fetus. Normally, the arches of the vertebra grow and close around the spinal cord to protect it. In some cases, however, part of the arch (known as the "laminar arch") fails to develop and does not close around the spinal cord. This is called "spina bifida." While most children survive this birth defect, they can be left with many disabilities including paralysis, difficulty controlling bowel and bladder function, hydrocephalus, or excessive fluid in the brain, and mental retardation. The degree of impairment is usually related to the location of the defect. The higher the opening occurs on the spine, the greater the defect.
Signs and Symptoms of Spina Bifida
Treatment in the Spina Bifida Clinic
The treatment team provides long-term management and coordination of care with patients, their families and primary care physicians. The treatment program includes urologic testing, radiology services (X-ray, MRI and CT scan), physical and occupational therapy, bracing assessment and nutrition consultations.
Spina Bifida Team
The core treatment team includes:
The Pediatric Orthopaedist is the surgeon who specializes in the musculoskeletal system of children, including fractures, trauma, bone diseases and disorders, soft tissue impairments and pediatric spinal deformity such as scoliosis and kyphosis. They manage the problems associated with spasticity and when necessary, provide surgical interventions such as tendon lengthening or correcting a bony deformity. Our physicians offer insight into the orthopaedic issues facing children with spina bifida and provide treatments that minimize deformity and maximize mobility and function.
Richard Bowen, M.D.
Pediatric Orthopaedic Surgeon
The Pediatric Neurologist is a physician who specializes in disorders of the brain, spinal cord, peripheral nerves and muscles in children. Pediatric neurologists focus on establishing the underlying cause of neurological disorders, including spina bifida. They also treat the associated medical problems such as seizures, movement disorders, metabolic conditions and neurobehavioral issues.
Michel Philippart, M.D.
The Pediatric Urologist is a physician who specializes in the diagnosis and treatment of congenital and acquired urological conditions and diseases in children. The pediatric urologist at OIC provides medical management and surgical intervention for bowel and bladder function, one of the most persistent problems this patient population experiences.
Bernard Churchill, M.D.
The Pediatrician reviews medical issues and coordinates the general healthcare of the patient, in addition to working with the orthopaedic surgeon for pre-operative assessments if surgery is indicated and overseeing medical issues for hospitalized patients.
Marinda Tu, M.D.
The Physical Therapist is a health care professional trained to assess and treat movement and function. Physical therapists examine muscle range of motion, spasticity, strength and posture and assess their impact on function and mobility. Our physical therapists communicate with community therapists in the design and implementation of treatment interventions and equipment such as wheelchairs and braces. Gait studies at the Kameron Gait and Motion Analysis Laboratory are conducted by physical therapists.
Cindy Bailey, PhD, D.P.T., O.C.S., S.C.S., A.T.C., E.M.T.
The Social Worker provides psychosocial assessments, assists with locating community resources and assists in the coordination of schooling and social activities.
Romana Crespo-Belarde, L.C.S.W.
The Nurse Specialist assists in making sure all medical orders are carried out, and provides case management and nursing assessment for the patient.
Cynthia Costello, R.N.
Also part of the core team is a registered dietician and orthotist. The dietician provides assistance in meal plans so patients receive adequate caloric intake for healthy growth and development. The orthotist works with the team to prevent unequal or unbalanced muscle groups which can lead to deformities as the child grows. If a deformity is perceived, the orthotist works with the therapists in bandaging, casting, or bracing to bring the deformed extremity into the proper plane of function to maximize available motor function.